A family living with congenital heart disease does not travel on this journey alone. There are so many others, including friends, co-workers and loved ones, who are ready to give the extra help that these families need.
A Family Support Team lets your family focus on your child when he or she is in the hospital or in recovery. By creating a Family Support Team before your child enters the hospital, you will be better able to prepare for the stay away from home.
When your child is in the hospital, the last thing you want to do is leave at night and make a long drive home. But when you don't live near the hospital and don't have a place to stay, sleep, even just take a shower, what are you to do? Make use of Tree House, which provides lodging for families with a patient at Mary Bridge.
We have formed a Mended Little Hearts support group in the Puget Sound area to help families that have a child with a congenital heart defect or heart disease. There is hope and you are not alone. Please join us for our monthly family meetings (usually the first Tuesday of the month from 5:30 to 7pm). Separate groups for siblings and teens are offered. Dinner, child care and parking are provided. Check the Events Calendar for location and details.
To RSVP, receive our newsletter or obtain more information, please email, or call Darcie Miller at 253-858-3065.
The Mary Bridge Child Life Department is pleased to offer pre-operative tours and medical play for children and families scheduled for cardiac surgery or cardiac catheterization.
Pre-operative tours led by our child life specialists help familiarize patients and their families with the hospital environment and minimize anxiety prior to a child's scheduled procedure. Child life specialists help alleviate children's fears by providing developmentally appropriate information through medical play and games.
Tours are available for children and families (including siblings and parents of infants) who are scheduled for cardiac surgery or cardiac catheterization. Tours can be arranged for you by your child's cardiologist or cardiac surgery team.
For questions please call Child Life at 253-403-7598.
CarePages are free, private, personalized web pages available to patients and families at MultiCare facilities that help you stay in touch before, during and after a hospital stay, or any time care giving is needed. The service allows you control over communication and provides an easy way for friends and loved ones to respond with messages of support.
There are many good websites you can visit to get even more information on children's heart care, from diagnostic procedures to treatments to support resources. Here are some of our favorites:
Mary Bridge Children's Heart Center
American Heart Association
Children's Hospital & Health System of Wisconsin
Children's Mercy Hospitals & Clinics
Cincinnati Children's Hospital Medical Center
Circle of Hearts (Congenital Heart Information Network)
Congenital Heart Defect Online Handbook
Congenital Heart Defects (Texas Heart Institute)
Congenital Heart Defects (CardiopatÃas congÃ©nitas) (Texas Heart Institute) - en EspaÃ±ol
Congenital Heart Disease Screening Program (CNMC)
Congenital Heart Information Network
Hypoplastic left heart syndrome - video (CHOP)
Jamie's Heart Foundation
MedlinePlus Health Topics: Congenital Heart Disease
Mended Little Hearts - Puget Sound WA support group
Single ventricle - video (CHOP)
Tetralogy of Fallot - video (CHOP)
Transposition of the great arteries - video (CHOP)
Mary Bridge Children's Heart & Chest Center
Loma Linda University Children's Hospital - pectus excavatum
University of California, San Francisco Children's Hospital - pectus excavatum repair
University of Southern California School of Medicine, Cardiothoracic Surgery - patient's guide to lung surgery
Atrial septal defect
Going to the Doctor
Going to the Hospital
How Stitches Help Kids Heal
Mitral valve prolapse
What Happens in the Operating Room?
What Medicines Are and What They Do
Anesthesia - What to Expect
Heart & Circulatory System
Lungs & Respiratory System
Questions to Ask Your Doctor
Talking to Your Doctor
Types of Anesthesia
Understanding Medications and What They Do
What's It Like to Have Surgery?
What's It Like to Stay in the Hospital?
Whether a fictional story about a child going to the hospital, a true account of a family's experience with pediatric heart problems, or a clinical reference guide — can be very helpful. We think you'll find the following book selections to be a great source of information and inspiration.