Resources
ChIPPS' Universal Principles of Pediatric Palliative CareACT: The Association for the Care of Children with Life-Threatening Diseases and their Families
http://www.act.org.uk/
NHPCO: The National Hospice and Palliative Care Organization
www.nhpco.org/
Other Relevant Web Resources and Tools
The Institute for Family-Centered Care
http://www.familycenteredcare.org
This organization serves as a central resource for both family members and health care professionals.
Pediatric Pain- Science Helping Children
http://pediatric-pain.ca/
The American Academy of Pediatrics
http://www.aap.org/default.htm
This is the American policy and academic organization for pediatricians.
Children's Hospice International
http://www.chionline.org/
This organizationwas founded to provide a network of support and care for children with life-threatening conditions and their families. The site is organized with information for children as well as for adults.
http://dying.about.com/health/dying/msubchldloss.htm
A commercial site that has links to sites that deal with grief and bereavement over the loss of a child.